The purpose of this study was to better understand the needs of American Indians and Alaska Natives (AI/AN) with developmental disabilities (DD). A secondary goal was to improve and/or expand services. Methodology included a survey and interviews with representative AI/AN samples.
The study found a lack of resources supporting AI/AN individuals with DD and difficultly in accessing existing resources. The report lists recommendations including increased collaboration with AI/AN community members, increased availability of information regarding supporting agencies, sustained contact with AI/AN individuals and their families, education and training on developmental disabilities through tribal colleges and university Native American programs, and an inclusive center for information on AI/AN individuals and developmental disabilities. The report also includes contact information for existing resource and advocacy organizations for AI/AN individuals with DD and their families.